Friday, January 22, 2010

Keni sits alone in chair, oral feeding improves, no change in seizures

22 January 2010

Happy New Year to all!

Keni found a chair that she is able to sit in without help!!  We are so proud of her.  She is doing some really good walking (still with upper body support), but she isn't interested in practicing to sit or sit-to-stand - all she wants to do is walk.


Her seizures have not improved at all - may have even gotten worse.  We saw the neurologist (Dr. Tim Allen :-) ) last week.  He is still hopeful that the VNS will work for her.  He says that the longer it is in - the better the chances of it working.  We are also in agreement about keeping her off anti-seizure medication.


I am getting better about taking the time to feed her orally.  She is getting much less formula now-a-days.  She still gets a can of formula in the morning because she doesn't care to eat breakfast.  In addition, she will often get a can of formula before bed depending on what time we eat and how much she takes in orally.