Friday, July 16, 2010

Talking with Technology Camp

16 July 2010

Dress up time
Home from "Talking with Technology" camp.  Keni had a blast but is happy to be home with her family (and her own bed) again.

There was a zip-line, horseback riding, dancing, arts & crafts, and tons more fun stuff!!

We want to say "Thank You" to Amy once again for coming out here and attending camp with Keni - it meant alot to have someone we trust with her this past week.


We miss you already, Amy!

Monday, June 14, 2010

Grand Canyon and Las Vegas

14 June 2010

Grand Canyon Heli-tour

Just returning from our summer road trip.  Visited the Grand Canyon and took a helicopter tour... Keni did okay for about the first 10 minutes then she was not happy with the very bumpy ride.  Its a good thing we took the SHORT tour.

Hoover Dam is cool but there is quite a bit of road construction right now - oh and a checkpoint to go through before you cross the dam (anti-terrorism checkpoint).

I feel aweful!
Las Vegas is awesome but very crowded -especially after dark.  We stayed in the Bellagio Hotel and Casino and our room overlooked the fountains.  Keni got ill the first night and was not well at all the next day.  She tolerated some sight-seeing and then slept for several hours.  She felt better for the trip home but still not 100%.

We had a great time with our friends Sarah & Nicole.

Friday, March 19, 2010

San Antonio, Texas

19 March 2010

Just returned from a Spring Break vacation to San Antonio Texas, Mackenzie's place of birth.  Keni did excellent on the road trip.  We all really enjoyed the visits with good friends.

Big sister, Heather
Roswell, New Mexico

We are planning to send Keni to a "Talking with Technology" camp this summer.  It is a week-long sleepover camp run through the Denver Children's Hospital.  It trains and encourages the use of augmentative communication devices.  It will be a good opportunity for Keni.  The only issue is that parents are not allowed - given our serious trust issues this is very difficult for us.  We decided to send an aide that is like family to us (we luv u Amy).  It will be a very difficult week for me, but I am excited for Keni.

Carlsbad Caverns

Friday, January 22, 2010

Keni sits alone in chair, oral feeding improves, no change in seizures

22 January 2010

Happy New Year to all!

Keni found a chair that she is able to sit in without help!!  We are so proud of her.  She is doing some really good walking (still with upper body support), but she isn't interested in practicing to sit or sit-to-stand - all she wants to do is walk.

Her seizures have not improved at all - may have even gotten worse.  We saw the neurologist (Dr. Tim Allen :-) ) last week.  He is still hopeful that the VNS will work for her.  He says that the longer it is in - the better the chances of it working.  We are also in agreement about keeping her off anti-seizure medication.

I am getting better about taking the time to feed her orally.  She is getting much less formula now-a-days.  She still gets a can of formula in the morning because she doesn't care to eat breakfast.  In addition, she will often get a can of formula before bed depending on what time we eat and how much she takes in orally.