Tuesday, September 13, 2005

2005 September

Sept 13, 2005


Dear Friends, Family, and Mackenzie Fans,

It’s been almost 33 weeks now since Mackenzie’s near-drowning at the hands of the incompetent YMCA preschool, and sadly she is not making the fast recovery we had all hoped and prayed for. 
It has been a long and painful ordeal to make the small improvements we’ve seen so far, and there is little the doctors and neurologists can tell us right now about her future progress. 
She followed up with them earlier this month, and they are encouraged by the fact that she does show continued improvement. 

She is going to have a 24 hour EEG study on 17 October to try to figure out what is going on in her head. 
She continues to have seizure activity related to the injury, and although they are far fewer with her medications, there is some speculation that they or something else may be interrupting her recovery. 
I continue to hold out hope that we can figure out something and get her on the road to a faster recovery. 
In essence, we are still waiting for our miracle.  We’ll have to see what develops.

In the meantime, her head control is almost not an issue any longer, except when she is tired.

We now have a stander at home, and she tolerates standing sessions up to 40 minutes with no complaining. 
It took a few weeks to get to this duration, but she now seems to like it.  We always pep talk her through it, telling her how this should help her to stand, and eventually walk on her own again. 
I think its getting through to her.  It is hard to tell exactly what she does and doesn’t understand. 

She still isn’t talking, and she has great difficulty controlling her body movements.  Her balance is gradually improving. 
Although she cannot yet sit up on her own, she can now hold a sitting position for a short period (sometimes up to 12 seconds) before losing balance.
Physical Therapy with Chrissy Booher