Tuesday, May 10, 2005

2005 May

10 May 2005

Dear Family and Friends,

I guess its time for another "Mackenzie Update."  I've been hesitant
to send another because at times it certainly seems she isn't recovering nearly
fast enough, and that's quite depressing to us.  But in the past two weeks
there has been improvement, so here it is...

She wiggles all over the floor, and sometimes changes position/orientation
to see the TV or people, or to kick or hit at objects.  She makes a lot of
noise when she wants to, but as of yet no talking.

She is now opening her mouth to accept food.  She especially seems to like
her old favorites: spaghetti, macaroni and cheese, chicken nuggets and
fries, and many others.  She chews and swallows the food with no problem.
She definitely seems to prefer solids over puree!

She tries to hand a ball from her left hand to her right hand, but often
drops it.  She now finds and holds her hands together in front of her, and
seems to be getting slightly better control of her right hand and arm,
compared to what it has been.

The vomiting is considerably reduced, only one episode in the past two
weeks.  Mackenzie is still battling frequent seizure activity, but with anincrease in her meds, that too is less.  Some days, there is very little
teeth grinding as well.

Mackenzie's head and neck control is much better lately, and her trunk
muscles are strengthening.  Her current Occupational Therapist thinks with
just a little more trunk and arm control she may soon be able to sit on her