Dear Friends and Family:
Mackenzie's progress continues to be painstakingly slow. Her physical therapy is where she is currently making the most noticeable gains.
She's made tremendous improvement with some of her abdominal and torso muscular control in the past month.
With assistance, she can now move from a sitting position to a supported standing position and balance herself in a standing position for short periods, with only minor assistance at the hips or hands.
Just over a month ago, she would simply fold over. While this is a big improvement, she clearly has a long way to go. She's still completely dependent for all significant movement.
Unfortunately, she's still not communicating with us. We now have a new neurologist who has evaluated her condition. Her latest EEG shows considerable abnormalities. The neurologist is altering her medication in an attempt to help, but it will take at least a month to ramp up the new medication so we can minimize any side effects.
I believe she's currently fighting confusion and has difficulty with complex thoughts and ideas due to the abnormal electrical activity in her brain.
This is in addition to the control issues she faces from the damage done by oxygen deprivation.
She is able to activate toy switches (and occasionally light switches and door buttons) with some consistency, but it is difficult for her. Hopefully, as the newer medication takes effect, she will make some better progress.
Once again we have to wait and see.
We had a small gathering on November 6th. This was Mackenzie's fifth birthday, and a very difficult time for us.
Seeing her like this, it is hard to believe her fourth birthday party was a roller skating party. We hope and pray that the next year will be kinder on her than the last one has been.
Thanks for all your continued love and support.